Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

A. Cano-Garcinuño; D. Forns-Serrallonga; I. Mora-Gandarillas; A. Bercedo-Sanz; M. T. Callén-Blecua; J. A. Castillo-Laita; I. Casares-Alonso; E. Tauler-Toro; L. M. Alonso-Bernardo; Águeda García-Merino; I. Moneo-Hernández; O. Cortés-Rico; I. Carvajal-Urueña; J. J. Morell-Bernabé; I. Martín-Ibáñez; C. R. Rodríguez-Fernández-Oliva; M. T. Asensi-Monzó; C. Fernández-Carazo; J. Murcia-García; C. Durán-Iglesias; J. L. Montón-Álvarez; B. Domínguez-Aurrecoechea; M. Praena-Crespo

doi:https://doi.org/10.1016/j.aller.2015.04.002

Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

A. Cano-Garcinuño, D. Forns-Serrallonga, I. Mora-Gandarillas, A. Bercedo-Sanz, M. T. Callén-Blecua, J. A. Castillo-Laita, I. Casares-Alonso, E. Tauler-Toro, L. M. Alonso-Bernardo, Águeda García-Merino, I. Moneo-Hernández, O. Cortés-Rico, I. Carvajal-Urueña, J. J. Morell-Bernabé, I. Martín-Ibáñez, C. R. Rodríguez-Fernández-Oliva, M. T. Asensi-Monzó, C. Fernández-Carazo, J. Murcia-García, C. Durán-IglesiasJ. L. Montón-Álvarez, B. Domínguez-Aurrecoechea, M. Praena-Crespo

Department of Psichology of Clinic and Health

Research output: Contribution to journal › Article › Research › peer-review

Abstract

© 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.

Original language	English
Pages (from-to)	131-137
Journal	Allergologia et Immunopathologia
Volume	44
DOIs	https://doi.org/10.1016/j.aller.2015.04.002
Publication status	Published - 1 Mar 2016

Keywords

Asthma
Caregivers
Family impact
Quality of life

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Cano-Garcinuño, A., Forns-Serrallonga, D., Mora-Gandarillas, I., Bercedo-Sanz, A., Callén-Blecua, M. T., Castillo-Laita, J. A., Casares-Alonso, I., Tauler-Toro, E., Alonso-Bernardo, L. M., García-Merino, Á., Moneo-Hernández, I., Cortés-Rico, O., Carvajal-Urueña, I., Morell-Bernabé, J. J., Martín-Ibáñez, I., Rodríguez-Fernández-Oliva, C. R., Asensi-Monzó, M. T., Fernández-Carazo, C., Murcia-García, J., ... Praena-Crespo, M. (2016). Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire. Allergologia et Immunopathologia, 44, 131-137. https://doi.org/10.1016/j.aller.2015.04.002

Cano-Garcinuño, A. ; Forns-Serrallonga, D. ; Mora-Gandarillas, I. ; Bercedo-Sanz, A. ; Callén-Blecua, M. T. ; Castillo-Laita, J. A. ; Casares-Alonso, I. ; Tauler-Toro, E. ; Alonso-Bernardo, L. M. ; García-Merino, Águeda ; Moneo-Hernández, I. ; Cortés-Rico, O. ; Carvajal-Urueña, I. ; Morell-Bernabé, J. J. ; Martín-Ibáñez, I. ; Rodríguez-Fernández-Oliva, C. R. ; Asensi-Monzó, M. T. ; Fernández-Carazo, C. ; Murcia-García, J. ; Durán-Iglesias, C. ; Montón-Álvarez, J. L. ; Domínguez-Aurrecoechea, B. ; Praena-Crespo, M. / Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire. In: Allergologia et Immunopathologia. 2016 ; Vol. 44. pp. 131-137.

@article{549e21f4fdac4dbe8b3831176648adf5,

title = "Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire",

abstract = "{\textcopyright} 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.",

keywords = "Asthma, Caregivers, Family impact, Quality of life",

author = "A. Cano-Garcinu{\~n}o and D. Forns-Serrallonga and I. Mora-Gandarillas and A. Bercedo-Sanz and Call{\'e}n-Blecua, {M. T.} and Castillo-Laita, {J. A.} and I. Casares-Alonso and E. Tauler-Toro and Alonso-Bernardo, {L. M.} and {\'A}gueda Garc{\'i}a-Merino and I. Moneo-Hern{\'a}ndez and O. Cort{\'e}s-Rico and I. Carvajal-Urue{\~n}a and Morell-Bernab{\'e}, {J. J.} and I. Mart{\'i}n-Ib{\'a}{\~n}ez and Rodr{\'i}guez-Fern{\'a}ndez-Oliva, {C. R.} and Asensi-Monz{\'o}, {M. T.} and C. Fern{\'a}ndez-Carazo and J. Murcia-Garc{\'i}a and C. Dur{\'a}n-Iglesias and Mont{\'o}n-{\'A}lvarez, {J. L.} and B. Dom{\'i}nguez-Aurrecoechea and M. Praena-Crespo",

year = "2016",

month = mar,

day = "1",

doi = "https://doi.org/10.1016/j.aller.2015.04.002",

language = "English",

volume = "44",

pages = "131--137",

journal = "Allergologia et Immunopathologia",

issn = "0301-0546",

publisher = "Ediciones Doyma, S.L.",

}

Cano-Garcinuño, A, Forns-Serrallonga, D, Mora-Gandarillas, I, Bercedo-Sanz, A, Callén-Blecua, MT, Castillo-Laita, JA, Casares-Alonso, I, Tauler-Toro, E, Alonso-Bernardo, LM, García-Merino, Á, Moneo-Hernández, I, Cortés-Rico, O, Carvajal-Urueña, I, Morell-Bernabé, JJ, Martín-Ibáñez, I, Rodríguez-Fernández-Oliva, CR, Asensi-Monzó, MT, Fernández-Carazo, C, Murcia-García, J, Durán-Iglesias, C, Montón-Álvarez, JL, Domínguez-Aurrecoechea, B & Praena-Crespo, M 2016, 'Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire', Allergologia et Immunopathologia, vol. 44, pp. 131-137. https://doi.org/10.1016/j.aller.2015.04.002

Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire. / Cano-Garcinuño, A.; Forns-Serrallonga, D.; Mora-Gandarillas, I.; Bercedo-Sanz, A.; Callén-Blecua, M. T.; Castillo-Laita, J. A.; Casares-Alonso, I.; Tauler-Toro, E.; Alonso-Bernardo, L. M.; García-Merino, Águeda; Moneo-Hernández, I.; Cortés-Rico, O.; Carvajal-Urueña, I.; Morell-Bernabé, J. J.; Martín-Ibáñez, I.; Rodríguez-Fernández-Oliva, C. R.; Asensi-Monzó, M. T.; Fernández-Carazo, C.; Murcia-García, J.; Durán-Iglesias, C.; Montón-Álvarez, J. L.; Domínguez-Aurrecoechea, B.; Praena-Crespo, M.

In: Allergologia et Immunopathologia, Vol. 44, 01.03.2016, p. 131-137.

Research output: Contribution to journal › Article › Research › peer-review

TY - JOUR

T1 - Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

AU - Cano-Garcinuño, A.

AU - Forns-Serrallonga, D.

AU - Mora-Gandarillas, I.

AU - Bercedo-Sanz, A.

AU - Callén-Blecua, M. T.

AU - Castillo-Laita, J. A.

AU - Casares-Alonso, I.

AU - Tauler-Toro, E.

AU - Alonso-Bernardo, L. M.

AU - García-Merino, Águeda

AU - Moneo-Hernández, I.

AU - Cortés-Rico, O.

AU - Carvajal-Urueña, I.

AU - Morell-Bernabé, J. J.

AU - Martín-Ibáñez, I.

AU - Rodríguez-Fernández-Oliva, C. R.

AU - Asensi-Monzó, M. T.

AU - Fernández-Carazo, C.

AU - Murcia-García, J.

AU - Durán-Iglesias, C.

AU - Montón-Álvarez, J. L.

AU - Domínguez-Aurrecoechea, B.

AU - Praena-Crespo, M.

PY - 2016/3/1

Y1 - 2016/3/1

N2 - © 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.

AB - © 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.

KW - Asthma

KW - Caregivers

KW - Family impact

KW - Quality of life

U2 - https://doi.org/10.1016/j.aller.2015.04.002

DO - https://doi.org/10.1016/j.aller.2015.04.002

M3 - Article

VL - 44

SP - 131

EP - 137

JO - Allergologia et Immunopathologia

JF - Allergologia et Immunopathologia

SN - 0301-0546

ER -