TY - JOUR
T1 - Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire
AU - Cano-Garcinuño, A.
AU - Forns-Serrallonga, D.
AU - Mora-Gandarillas, I.
AU - Bercedo-Sanz, A.
AU - Callén-Blecua, M. T.
AU - Castillo-Laita, J. A.
AU - Casares-Alonso, I.
AU - Tauler-Toro, E.
AU - Alonso-Bernardo, L. M.
AU - García-Merino, Águeda
AU - Moneo-Hernández, I.
AU - Cortés-Rico, O.
AU - Carvajal-Urueña, I.
AU - Morell-Bernabé, J. J.
AU - Martín-Ibáñez, I.
AU - Rodríguez-Fernández-Oliva, C. R.
AU - Asensi-Monzó, M. T.
AU - Fernández-Carazo, C.
AU - Murcia-García, J.
AU - Durán-Iglesias, C.
AU - Montón-Álvarez, J. L.
AU - Domínguez-Aurrecoechea, B.
AU - Praena-Crespo, M.
PY - 2016/3/1
Y1 - 2016/3/1
N2 - © 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.
AB - © 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.
KW - Asthma
KW - Caregivers
KW - Family impact
KW - Quality of life
U2 - https://doi.org/10.1016/j.aller.2015.04.002
DO - https://doi.org/10.1016/j.aller.2015.04.002
M3 - Article
VL - 44
SP - 131
EP - 137
JO - Allergologia et Immunopathologia
JF - Allergologia et Immunopathologia
SN - 0301-0546
ER -