Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire

A. Cano-Garcinuño, D. Forns-Serrallonga, I. Mora-Gandarillas, A. Bercedo-Sanz, M. T. Callén-Blecua, J. A. Castillo-Laita, I. Casares-Alonso, E. Tauler-Toro, L. M. Alonso-Bernardo, Águeda García-Merino, I. Moneo-Hernández, O. Cortés-Rico, I. Carvajal-Urueña, J. J. Morell-Bernabé, I. Martín-Ibáñez, C. R. Rodríguez-Fernández-Oliva, M. T. Asensi-Monzó, C. Fernández-Carazo, J. Murcia-García, C. Durán-IglesiasJ. L. Montón-Álvarez, B. Domínguez-Aurrecoechea, M. Praena-Crespo

Research output: Contribution to journalArticleResearchpeer-review

Abstract

© 2015 SEICAP. Background: Parents'/caregivers' quality of life is an important aspect to consider when handling paediatric asthma, but there is a paucity of valid and reliable instruments to measure it. The Family Impact of Childhood Bronchial Asthma (IFABI-R) is a recently developed questionnaire to facilitate the assessment of asthma-related parents'/caregivers' quality of life. This study researches the psychometric properties of IFABI-R. Methods: Parents/main caregivers of 462 children between 4 and 14 years of age with active asthma were included in the sample. IFABI-R was administered on two different occasions and a number of other variables related to the parents'/caregivers' quality of life were measured: child's asthma control, family functioning, and parents'/caregivers' perception of asthma symptoms in the child. IFABI-R evaluative and discriminative properties were analysed, and the minimal important change in the IFABI-R score was identified. Results: IFABI-R showed high internal consistency (Cronbach's alpha = 0.941), cross-sectional construct validity (correlation with the degree of child's asthma control, family functioning and parent/caregiver perception of the child's asthma symptoms), longitudinal construct validity (correlation of changes in the IFABI-R with changes in asthma control and changes in the perception of symptoms), sensitivity to change and test-retest reliability. An absolute change of 0.3 units in IFABI-R related to a minimal significant change in the parents'/caregivers' quality of life. Conclusions: IFABI-R is a reliable and valid instrument to study the quality of life of parents/caregivers of children with asthma.
Original languageEnglish
Pages (from-to)131-137
JournalAllergologia et Immunopathologia
Volume44
DOIs
Publication statusPublished - 1 Mar 2016

Keywords

  • Asthma
  • Caregivers
  • Family impact
  • Quality of life

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    Cano-Garcinuño, A., Forns-Serrallonga, D., Mora-Gandarillas, I., Bercedo-Sanz, A., Callén-Blecua, M. T., Castillo-Laita, J. A., Casares-Alonso, I., Tauler-Toro, E., Alonso-Bernardo, L. M., García-Merino, Á., Moneo-Hernández, I., Cortés-Rico, O., Carvajal-Urueña, I., Morell-Bernabé, J. J., Martín-Ibáñez, I., Rodríguez-Fernández-Oliva, C. R., Asensi-Monzó, M. T., Fernández-Carazo, C., Murcia-García, J., ... Praena-Crespo, M. (2016). Quality of life in caregivers of children with asthma: Validity and reliability of the IFABI-R questionnaire. Allergologia et Immunopathologia, 44, 131-137. https://doi.org/10.1016/j.aller.2015.04.002