Fraternidad política y enfermedades raras

Translated title of the contribution: Political Fraternity and Rare Diseases

Angel Puyol*

*Corresponding author for this work

Research output: Contribution to journalArticleResearchpeer-review

2 Citations (Scopus)
1 Downloads (Pure)

Abstract

Rare diseases generally receive less funding for their medical research and treatments than other diseases. Apart from well-known scientific and economic explanations, there are two major ethical positions regarding this fact, the one that approves it for reasons of utilitarian ethics, and the one that condemns it by insisting on egalitarian and individual rights reasons. In this article, I analyse the problems of both types of moral justification, and propose an ethical alternative based on the idea of political fraternity that, applied to rare diseases, avoids the worst consequences of both utilitarianism and the language of individual rights to health and mere egalitarianism.

Translated title of the contributionPolitical Fraternity and Rare Diseases
Original languageSpanish
Pages (from-to)351-368
Number of pages18
JournalAraucaria
Issue number46
DOIs
Publication statusPublished - 10 Mar 2021

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