Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives

Joaquín T. Limonero; Jorge Maté; Dolors Mateo; Jesús González-Barboteo; Ramon Bayés; Montserrat Bernaus; Carme Casas; Montserrat López; Agustina Sirgo; Silvia Viel; Cruz Sánchez; María José Gómez-Romero; María Álvarez-Moleiro; Joaquín Tomás-Sábado

doi:https://doi.org/10.1016/j.anyes.2016.09.001

Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives

Joaquín T. Limonero, Jorge Maté, Dolors Mateo, Jesús González-Barboteo, Ramon Bayés, Montserrat Bernaus, Carme Casas, Montserrat López, Agustina Sirgo, Silvia Viel, Cruz Sánchez, María José Gómez-Romero, María Álvarez-Moleiro, Joaquín Tomás-Sábado

Research output: Contribution to journal › Article › Research › peer-review

7 Citations (Scopus)

Abstract

© 2016 Sociedad Española para el Estudio de la Ansiedad y el Estrés - SEAS. Published by Elsevier España, S.L.U. All rights reserved. This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional’s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers’ emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.

Original language	English
Pages (from-to)	104-109
Journal	Ansiedad y Estres
Volume	22
DOIs	https://doi.org/10.1016/j.anyes.2016.09.001
Publication status	Published - 1 Jul 2016

Keywords

Emotional distress
Palliative care
Primary caregiver
Scale
Screening

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Limonero, J. T., Maté, J., Mateo, D., González-Barboteo, J., Bayés, R., Bernaus, M., Casas, C., López, M., Sirgo, A., Viel, S., Sánchez, C., Gómez-Romero, M. J., Álvarez-Moleiro, M., & Tomás-Sábado, J. (2016). Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives. Ansiedad y Estres, 22, 104-109. https://doi.org/10.1016/j.anyes.2016.09.001

Limonero, Joaquín T. ; Maté, Jorge ; Mateo, Dolors ; González-Barboteo, Jesús ; Bayés, Ramon ; Bernaus, Montserrat ; Casas, Carme ; López, Montserrat ; Sirgo, Agustina ; Viel, Silvia ; Sánchez, Cruz ; Gómez-Romero, María José ; Álvarez-Moleiro, María ; Tomás-Sábado, Joaquín. / Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives. In: Ansiedad y Estres. 2016 ; Vol. 22. pp. 104-109.

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title = "Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives",

abstract = "{\textcopyright} 2016 Sociedad Espa{\~n}ola para el Estudio de la Ansiedad y el Estr{\'e}s - SEAS. Published by Elsevier Espa{\~n}a, S.L.U. All rights reserved. This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional{\textquoteright}s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers{\textquoteright} emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.",

keywords = "Emotional distress, Palliative care, Primary caregiver, Scale, Screening",

author = "Limonero, {Joaqu{\'i}n T.} and Jorge Mat{\'e} and Dolors Mateo and Jes{\'u}s Gonz{\'a}lez-Barboteo and Ramon Bay{\'e}s and Montserrat Bernaus and Carme Casas and Montserrat L{\'o}pez and Agustina Sirgo and Silvia Viel and Cruz S{\'a}nchez and G{\'o}mez-Romero, {Mar{\'i}a Jos{\'e}} and Mar{\'i}a {\'A}lvarez-Moleiro and Joaqu{\'i}n Tom{\'a}s-S{\'a}bado",

year = "2016",

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Limonero, JT, Maté, J, Mateo, D, González-Barboteo, J, Bayés, R, Bernaus, M, Casas, C, López, M, Sirgo, A, Viel, S, Sánchez, C, Gómez-Romero, MJ , Álvarez-Moleiro, M & Tomás-Sábado, J 2016, 'Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives', Ansiedad y Estres, vol. 22, pp. 104-109. https://doi.org/10.1016/j.anyes.2016.09.001

Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives. / Limonero, Joaquín T.; Maté, Jorge; Mateo, Dolors; González-Barboteo, Jesús; Bayés, Ramon; Bernaus, Montserrat; Casas, Carme; López, Montserrat; Sirgo, Agustina; Viel, Silvia; Sánchez, Cruz; Gómez-Romero, María José ; Álvarez-Moleiro, María; Tomás-Sábado, Joaquín.

In: Ansiedad y Estres, Vol. 22, 01.07.2016, p. 104-109.

Research output: Contribution to journal › Article › Research › peer-review

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T1 - Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives

AU - Limonero, Joaquín T.

AU - Maté, Jorge

AU - Mateo, Dolors

AU - González-Barboteo, Jesús

AU - Bayés, Ramon

AU - Bernaus, Montserrat

AU - Casas, Carme

AU - López, Montserrat

AU - Sirgo, Agustina

AU - Viel, Silvia

AU - Sánchez, Cruz

AU - Gómez-Romero, María José

AU - Álvarez-Moleiro, María

AU - Tomás-Sábado, Joaquín

PY - 2016/7/1

Y1 - 2016/7/1

N2 - © 2016 Sociedad Española para el Estudio de la Ansiedad y el Estrés - SEAS. Published by Elsevier España, S.L.U. All rights reserved. This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional’s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers’ emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.

AB - © 2016 Sociedad Española para el Estudio de la Ansiedad y el Estrés - SEAS. Published by Elsevier España, S.L.U. All rights reserved. This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional’s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers’ emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.

KW - Emotional distress

KW - Palliative care

KW - Primary caregiver

KW - Scale

KW - Screening

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DO - https://doi.org/10.1016/j.anyes.2016.09.001

M3 - Article

VL - 22

SP - 104

EP - 109

ER -