Development of the DME-C: A scale for detecting emotional distress in primary caregivers of patients living with advanced illness or approaching end of their lives

Joaquín T. Limonero, Jorge Maté, Dolors Mateo, Jesús González-Barboteo, Ramon Bayés, Montserrat Bernaus, Carme Casas, Montserrat López, Agustina Sirgo, Silvia Viel, Cruz Sánchez, María José Gómez-Romero, María Álvarez-Moleiro, Joaquín Tomás-Sábado

Research output: Contribution to journalArticleResearchpeer-review

7 Citations (Scopus)

Abstract

© 2016 Sociedad Española para el Estudio de la Ansiedad y el Estrés - SEAS. Published by Elsevier España, S.L.U. All rights reserved. This paper presents the development of the Detection of Emotional Distress Scale in primary Caregivers (DED-C) of patients living with advanced disease or terminal illness who are receiving palliative care. The scale development process is described. For this purpose, literature has been reviewed and a theoretical framework of study as well as the characteristics of the screening tool have been established. The DED-C scale consists of 2 parts: 1) 3 questions addressed to primary caregivers, and 2) the health care professional’s appreciation or observation of any external signs of emotional distress on behalf of the caregivers. The final scale was reviewed by experts and caregivers. The DED-C scale will be an appropriate tool for identifying caregivers’ emotional distress. We propose the systematic use of DED-C for early detection of and specific intervention on emotional distress.
Original languageEnglish
Pages (from-to)104-109
JournalAnsiedad y Estres
Volume22
DOIs
Publication statusPublished - 1 Jul 2016

Keywords

  • Emotional distress
  • Palliative care
  • Primary caregiver
  • Scale
  • Screening

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