Autonomy and isolation experienced by patients and primary caregivers during COVID ‐19 hospitalization in Barcelona (Spain)

Olga Mestres‐Soler, Juan M. Leyva-Moral, Mariela Aguayo-González, Esperanza Zuriguel‐Pérez, Marta Rosales, Rebeca Gómez-Ibáñez

Research output: Contribution to journalArticleResearchpeer-review

1 Citation (Scopus)

Abstract

This study aims to describe patients' and family caregivers' hospitalization experiences during the COVID-19 pandemic. Using qualitative exploratory descriptive methods, 13 patients admitted to the largest hospital in Barcelona (Spain) due to COVID-19 were interviewed by telephone once discharged, as were eight primary caregivers. Data were analyzed using the content analysis method proposed by Krippendorff. Two main themes were identified: (i) Acceptance of mandatory isolation for patients and family caregivers, which refers to the verbalization of a feeling that justifies the imposed isolation and the need for the use of personal protective equipment by the health team for everyone's safety; and (ii) Limited autonomy during hospitalization for patients and family caregivers, which describes participants' perceptions of autonomy during hospitalization. Patients and caregivers experienced feelings of loneliness, which negatively affected their emotional health. In addition, they experienced reduced autonomy due to new habits and routines intended to control the pandemic for the benefit of public and global health.

Original languageEnglish
Pages (from-to)853-861
Number of pages9
JournalNursing and Health Sciences
Volume24
Issue number4
Early online date18 Sept 2022
DOIs
Publication statusPublished - Dec 2022

Keywords

  • SARS-CoV-2
  • autonomy
  • family
  • isolation
  • qualitative research

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