Atlas of axial spondyloarthritis in Spain 2017: Study design and population

Marco Garrido-Cumbrera, Victoria Navarro-Compán, Pedro Zarco, Eduardo Collantes-Estévez, David Gálvez-Ruiz, Olta Braçe, Jorge Chacón García, Carles Blanch Mur, Angels Costa Ferrer, Alvaro Hidalgo Vega, Pedro Plazuelo Ramos, Jordi Gratacós Masmitja

    Research output: Contribution to journalArticleResearch

    5 Citations (Scopus)

    Abstract

    © 2018 Elsevier España, S.L.U. and Sociedad Española de Reumatología y Colegio Mexicano de Reumatología Objective: Atlas of Axial Spondyloarthritis in Spain 2017 aims to better understand the reality of the patients suffering from this disease from an integrated approach. Methods: The Atlas 2017 based its results on an extensive cross-sectional patient survey conducted in Spain (2016), validated by a multidisciplinary group of experts on spondyloarthritis. Results: Data from 680 patients with axSpA were obtained, most of them suffered from AS, were HLA-B27 positive, older than 45 years, and live as part of a couple. A large percentage had university studies, were disabled and members of a patient association. Patients reported a diagnostic delay of 8.5 years, high disease activity (BASDAI 5.5 ± 2.2), moderate-important stiffness (61.0%), medium-high functional limitation (74.9%), and psychological distress (GHQ 5.7 ± 4.5). A total of 54.7% reported taking NSAIDs, 28.4% DMARDs, 36.3% biological therapy and 32.2% were not receiving pharmacological treatment. Conclusions: The Atlas survey data reveals still a long diagnostic delay, high disease activity, psychological distress, while an important proportion could be undertreated.
    Original languageEnglish
    Pages (from-to)127-132
    JournalReumatologia Clinica
    Volume15
    DOIs
    Publication statusPublished - 1 May 2019

    Keywords

    • Axial spondyloarthritis
    • Burden of disease
    • Healthcare management
    • Patient perspective

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