TY - JOUR
T1 - Views on the Effects of the Spanish Dependency Law on Caregivers' Quality of Life Using Concept Mapping
AU - Salvador-Piedrafita, María
AU - Malmusi, Davide
AU - Mehdipanah, Roshanak
AU - Rodríguez-Sanz, Maica
AU - Espelt, Albert
AU - Pérez, Cristina
AU - Solf, Elisabeth
AU - Abajo Del Rincón, María
AU - Borrell, Carme
PY - 2017/4/1
Y1 - 2017/4/1
N2 - © SAGE Publications. In 2006 the Spanish Dependency Law established new rights for people in situation of dependency. The impact of the Law could have also affected the quality of life of their carers. This study aims to understand how the Law may have influenced caregivers' quality of life through their own perceptions and those of Primary Health Care professionals, and to compare both perspectives. The study used Concept Mapping, a mixed methods technique. In total, 16 caregivers and 21 professionals participated. Both groups identified a mix of positive and negative effects. Uncertainties and delays in granting benefits were reported. However, several advantages were identified, such as the possibility of sharing the burden of care, thus reducing its physical, mental and social consequences, while at the same time being able to maintain responsibility. Most of the mechanisms identified were common to both caregivers and professionals; the most notable differences were that the latter attached more importance to economic support and less to the negative effects of implementation of the Law. This study reveals positive effects of the Law on caregivers' quality of life and the potential for improvement of some negative aspects in its implementation related with the context of austerity.
AB - © SAGE Publications. In 2006 the Spanish Dependency Law established new rights for people in situation of dependency. The impact of the Law could have also affected the quality of life of their carers. This study aims to understand how the Law may have influenced caregivers' quality of life through their own perceptions and those of Primary Health Care professionals, and to compare both perspectives. The study used Concept Mapping, a mixed methods technique. In total, 16 caregivers and 21 professionals participated. Both groups identified a mix of positive and negative effects. Uncertainties and delays in granting benefits were reported. However, several advantages were identified, such as the possibility of sharing the burden of care, thus reducing its physical, mental and social consequences, while at the same time being able to maintain responsibility. Most of the mechanisms identified were common to both caregivers and professionals; the most notable differences were that the latter attached more importance to economic support and less to the negative effects of implementation of the Law. This study reveals positive effects of the Law on caregivers' quality of life and the potential for improvement of some negative aspects in its implementation related with the context of austerity.
KW - concept mapping
KW - informal caregivers
KW - public policies
KW - quality of life
KW - Spain
UR - https://www.scopus.com/pages/publications/85015328811
U2 - 10.1177/0020731416685494
DO - 10.1177/0020731416685494
M3 - Article
SN - 0020-7314
VL - 47
SP - 233
EP - 257
JO - International Journal of Health Services
JF - International Journal of Health Services
IS - 2
ER -